Patient Support Groups in New Jersey
Disclaimer: This listing is not all-inclusive of patient support groups throughout New Jersey.
Inclusion in this list does not imply endorsement of these groups by HGANJ.
The Turner Syndrome Society of the US / New Jersey Chapter
The Turner Syndrome Society of the United States' mission is to create awareness, promote research, and provide support for all persons touched by Turner Syndrome. The NJ Chapter provides local support with access to the web site www.turnersyndromenj.com, an online support group, monthly electronic newsletters, quarterly meetings, various social and educational events, and an invitation to the TSSUS national conference. To learn more about TSSUS - NJ Chapter, please call 732-217-3021 or email tssusnj@turnersyndromenj.com.
Fragile X Syndrome Association of New Jersey
http://www.fragilex.org/html/new_jersey.htm
My Genes, My Risk
My Genes, My Risk is a support group designed for people at high risk of cancer due to their genetic status and their family members who wish to learn more. For more information or to register, please contact Dana Farengo Clark at 856-325-6716 or call 1-800-8-Cooper. This group meets in Voorhees, NJ. 2010 meetings are scheduled for 6:00-7:30pm on 2/16, 5/18, 9/28 and 11/16.
The Time for Healing
The Time for Healing is a support group for those who have ended pregnancies for fetal ultrasound or genetic testing abnormalities. This group generally meets monthly on a Sunday evening in Hamilton, NJ. Coordinators are Denise Richardson, RNC, and Dee Lewis, MA, MS. Potential members can contact Dee Lewis at (609) 394-4026 for more information.
HART (Healing And Recovering after Termination)
HART is a group is for people who have ended pregnancies because of fetal abnormalities. This group meets in Long Branch, NJ. Please call (732) 923-6526 for more information.
F.A.T.E. (Feelings After the Termination Experience)
F.A.T.E. meets every other Wednesday 7-9pm at Overlook Hospital in Summit, NJ. Contact Christina Armeli (732-235-6350; armelich@umdnj.edu) or Gisela Rodriguez (973 972-3302) for more information.
AFTER
AFTER is a group for people who ended a pregnancy with a genetic disease or congenital anomaly. This group meets in Hackensack, NJ. Call (201) 996-5264 for more information.