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Educational Online Resources HGANJ is providing this listing of web resources for educational purposes only and is not responsible for the content of these web resources.
U.S. government resources
Centers for Disease Control and Prevention (CDC) / Office of Genomics and Disease Prevention (OGDP) http://www.cdc.gov/genomics/
Centers for Disease Control and Prevention (CDC) / National Center on Birth Defects and Developmental Disabilities (NCBDDD) http://www.cdc.gov/ncbddd/
Genetics Home Reference (US National Library of Medicine) – searchable database including a genetics glossary http://ghr.nlm.nih.gov/ghr/
Health Resources and Services Administration (HRSA) / Maternal and Child Health Bureau (MCHB) http://www.mchb.hrsa.gov/
National Coalition for Health Professional Education in Genetics (NCHPEG) http://www.nchpeg.org/
National Guideline Clearinghouse - searchable database for evidence-based clinical practice guidelines http://www.guideline.gov/
National Health Information Center (NHIC) http://www.health.gov/nhic/
National Human Genome Research Institute (NHGRI) http://www.genome.gov/
National Institutes of Health (NIH) http://www.nih.gov/
Office of Rare Diseases (ORD) http://rarediseases.info.nih.gov/
Online Mendelian Inheritance in Man (OMIM) – searchable database for genetic conditions and known genes http://www.ncbi.nlm.nih.gov/sites/entrez?db=OMIM
PubMed (US National Library of Medicine) - searchable database for scientific journal articles http://www.ncbi.nlm.nih.gov/sites/entrez?db=PubMed
U.S. Surgeon General's Family History Initiative – includes link to download "My Family Health Portrait" http://www.hhs.gov/familyhistory/
U.S. government-funded organizations
GeneTests – searchable database for genetic disorders, tests/laboratories, and clinics/providers http://www.geneclinics.org/
National Dissemination Center for Children with Disabilities (NICHCY) http://www.nichcy.org/
National Newborn Screening & Genetics Resource Center http://genes-r-us.uthscsa.edu/
New Jersey state resources
HealthyNJ Information for Healthy Living http://www.healthynj.org/index.htm
Health Research and Educational Trust of New Jersey (HRET) http://www.njha.com/hret/
Maternal and Child Health Consortia:
Northern NJ Maternal / Child Health Consortium (NNJM/CHC) http://www.maternalchildhealth.org/
Central NJ Maternal and Child Health Consortium (CNJMCHC) http://www.cnjmchc.org/home.asp
Southern NJ Perinatal Cooperative (SNJPC) http://www.snjpc.org/
NJ Self-Help Group Clearinghouse http://www.njgroups.org/
NJ Department of Health and Senior Services http://www.state.nj.us/health/index.shtml
NJ Department of Health and Senior Services - Division of Family Health Services http://www.state.nj.us/health/fhs/index.html
NJ Department of Health and Senior Services - Maternal, Child, and Community Health Services (MCCH) http://www.state.nj.us/health/fhs/chshome.htm
NJ Department of Health and Senior Services / Division of Family Health Services / Special Child Health Services http://www.state.nj.us/health/fhs/sch/index.shtml
NJ Department of Health and Senior Services / Division of Family Health Services / Newborn Genetic and Biochemical Screening http://www.state.nj.us/health/fhs/sch/index.shtml
Non-profit organizations
March of Dimes http://www.marchofdimes.com/ or http://www.nacersano.org/
March of Dimes, New Jersey Chapter http://www.marchofdimes.com/newjersey/
National Organization for Rare Disorders (NORD) http://www.rarediseases.org/
Neurofibromatosis Inc., Mid-Atlantic Chapter (serves NJ, PA, DE, MD, VA, WV, Wash. DC, NC) http://www.nfmidatlantic.org/
Organization of Teratology Information Specialists (OTIS) (includes fact sheets and a directory of hotlines to call regarding the safety of taking certain medications during pregnancy) http://www.otispregnancy.org
The Genetic Alliance (includes directories of genetic conditions and advocacy & support groups) www.geneticalliance.org
Turner Syndrome Society of the U.S., New Jersey Chapter www.turnersyndromenj.com
New Jersey Rett Syndrome Association http://www.njrsa.org/index.php
Professional societies / organizations
American Academy of Pediatrics (AAP) http://www.aap.org/
American College of Medical Genetics (ACMG) http://www.acmg.net/
American College of Obstetricians and Gynecologists (ACOG) http://www.acog.org/
American Medical Association (AMA) http://www.ama-assn.org/
American Society for Reproductive Medicine http://www.asrm.org/
American Society of Clinical Oncology http://www.asco.org/
American Society of Human Genetics (ASHG) http://www.ashg.org/genetics/ashg/ashgmenu.htm
Genetics societies homepage http://genetics.faseb.org/
Mid-Atlantic Regional Human Genetics Network (MARHGN) http://www.pitt.edu/~marhgn/
National Society of Genetic Counselors (NSGC) http://nsgc.org/
Additional educational resources
Genetics Education Center www.kumc.edu/gec/geneinfo.html
American Medical Association family history tools http://www.ama-assn.org/ama/pub/category/2380.html
Human Genome Project Education Resources http://www.ornl.gov/sci/techresources/Human_Genome/education/education.shtml
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