Genetic Disorders Support Resources



The Turner Syndrome Society of the US / New Jersey Chapter

The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and develop programs for education - information - support, which will increase professional awareness and enhance medical care of those affected by Turner syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner syndrome. TSF is a registered 501(c)3 organization incorporated in New Jersey, EIN #27-1409942. 


Turner Syndrome Foundation, Inc.

P.O. Box 726, Holmdel, NJ 07733

732-217-3021 / Toll Free: 800-594-4585 / Fax: 800-594-3862.


Fragile X Syndrome Association of New Jersey

The FXANJ is an association of families and professionals dedicated to improving the lives of those living with Fragile X syndrome. For more information visit


New Jersey Rett Syndrome Association

The goals of the New Jersey Rett Syndrome Association (NJRSA) are to contribute towards an improved quality of life for girls and women affected by Rett Syndrome, raise awareness of the disorder and support research for a treatment and cure. By raising the awareness we foster public attitudes conducive to early intervention, treatment, support and research of Rett Syndrome. NJRSA is a 501(C)3 organization. 



DISCLAIMER:  The information contained in the Human Genetics Association of New Jersey, Inc. web site is intended for educational purposes only. Individuals requiring genetic evaluation or medical treatment should contact their local genetics center or health care provider for appropriate care.  Inclusion of a link to an online resource does not represent an endorsement of that site by the Human Genetics Association of New Jersey, Inc.

2021: $60 membership fee (includes CEUs for May and September meeting)

$40  GC fee for Full Day January Conference (not claiming CEU's)

$75 genetic counselor CEU fee for non-members for Full Day January Conference