Educational Online Resources
HGANJ is providing this listing of web resources for educational purposes only and is not responsible for the content of these web resources.
U.S. government resources
Centers for Disease Control and Prevention (CDC) / Office of Genomics and Disease Prevention (OGDP)
Genetics Home Reference (US National Library of Medicine)
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searchable database including a genetics glossary
Health Resources and Services Administration (HRSA) / Maternal and Child Health Bureau (MCHB)
National Coalition for Health Professional Education in Genetics (NCHPEG)
National Guideline Clearinghouse
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searchable database for evidence-based clinical practice guidelines
National Health Information Center (NHIC)
National Human Genome Research Institute (NHGRI)
National Institutes of Health (NIH)
Online Mendelian Inheritance in Man (OMIM)
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searchable database for genetic conditions and known genes
PubMed (US National Library of Medicine)
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searchable database for scientific journal articles
U.S. Surgeon General's Family History Initiative
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includes link to download "My Family Health Portrait"
U.S. government-funded organizations
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searchable database for genetic disorders, tests/laboratories, and clinics/providers
National Dissemination Center for Children with Disabilities (NICHCY)
National Newborn Screening & Genetics Resource Center
New Jersey State Resources
HealthyNJ Information for Healthy Living
Health Research and Educational Trust of New Jersey (HRET)
Maternal and Child Health Consortia:
NJ Self-Help Group Clearinghouse
NJ Department of Health and Senior Services
NJ Department of Health and Senior Services - Division of Family Health Services
NJ Department of Health and Senior Services
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Maternal, Child, and Community Health Services (MCCH)
NJ Department of Health and Senior Services
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Division of Family Health Services / Special Child Health Services
NJ Department of Health and Senior Services
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Division of Family Health Services / Newborn Genetic and Biochemical Screening
Non-profit organizations
F.O.R.C.E (Facing Our Risk of Cancer Empowered)
March of Dimes, New Jersey Chapter
National Organization for Rare Disorders (NORD)
Neurofibromatosis Inc., Mid-Atlantic Chapter
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serves NJ, PA, DE, MD, VA, WV, Wash. DC, NC
Organization of Teratology Information Specialists (OTIS)
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includes fact sheets and a directory of hotlines to call regarding the safety of taking certain medications during pregnancy
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includes directories of genetic conditions and advocacy & support groups
Turner Syndrome Society of the U.S., New Jersey Chapter
New Jersey Rett Syndrome Association
Professional societies / organizations
American Academy of Pediatrics (AAP)
American College of Medical Genetics (ACMG)
American College of Obstetricians and Gynecologists (ACOG)
American Medical Association (AMA)
American Society for Reproductive Medicine
American Society of Clinical Oncology
American Society of Human Genetics (ASHG)
Mid-Atlantic Regional Human Genetics Network (MARHGN)
National Society of Genetic Counselors (NSGC)
Additional educational resources