Educational Online Resources

 

HGANJ is providing this listing of web resources for educational purposes only and is not responsible for the content of these web resources.

 

U.S. government resources

 

Centers for Disease Control and Prevention (CDC) / Office of Genomics and Disease Prevention (OGDP) 

Centers for Disease Control and Prevention (CDC) / National Center on Birth Defects and Developmental Disabilities (NCBDDD)   

Genetics Home Reference (US National Library of Medicine)

  • searchable database including a genetics glossary

Health Resources and Services Administration (HRSA) / Maternal and Child Health Bureau (MCHB)

National Coalition for Health Professional Education in Genetics (NCHPEG) 

National Guideline Clearinghouse

  • searchable database for evidence-based clinical practice guidelines  

National Health Information Center (NHIC)

National Human Genome Research Institute (NHGRI) 

National Institutes of Health (NIH)  

Office of Rare Diseases (ORD)  

Online Mendelian Inheritance in Man (OMIM)

  • searchable database for genetic conditions and known genes  

PubMed (US National Library of Medicine)  

  • searchable database for scientific journal articles  

U.S. Surgeon General's Family History Initiative 

  • includes link to download "My Family Health Portrait"   

 

 

U.S. government-funded organizations

 

GeneTests

  • searchable database for genetic disorders, tests/laboratories, and clinics/providers  

National Dissemination Center for Children with Disabilities (NICHCY) 

National Newborn Screening & Genetics Resource Center 

 

 

New Jersey State Resources

 

HealthyNJ Information for Healthy Living   

Health Research and Educational Trust of New Jersey (HRET) 

Maternal and Child Health Consortia:

 

NJ Self-Help Group Clearinghouse 

NJ Department of Health and Senior Services   

NJ Department of Health and Senior Services - Division of Family Health Services 

NJ Department of Health and Senior Services

  • Maternal, Child, and Community Health Services (MCCH)    

NJ Department of Health and Senior Services

  • Division of Family Health Services / Special Child Health Services

NJ Department of Health and Senior Services

  • Division of Family Health Services / Newborn Genetic and Biochemical Screening  

 

 

Non-profit organizations

 

F.O.R.C.E (Facing Our Risk of Cancer Empowered)

March of Dimes 

March of Dimes, New Jersey Chapter 

National Organization for Rare Disorders (NORD)  

Neurofibromatosis Inc., Mid-Atlantic Chapter

  • serves NJ, PA, DE, MD, VA, WV, Wash. DC, NC  

Organization of Teratology Information Specialists (OTIS)

  • includes fact sheets and a directory of hotlines to call regarding the safety of taking certain medications during pregnancy  

The Genetic Alliance

  • includes directories of genetic conditions and advocacy & support groups  

Turner Syndrome Society of the U.S., New Jersey Chapter  

New Jersey Rett Syndrome Association 

 

 

Professional societies / organizations

 

American Academy of Pediatrics (AAP)

American College of Medical Genetics (ACMG)

American College of Obstetricians and Gynecologists (ACOG)  

American Medical Association (AMA)  

American Society for Reproductive Medicine  

American Society of Clinical Oncology  

American Society of Human Genetics (ASHG)

Genetics societies homepage  

Mid-Atlantic Regional Human Genetics Network (MARHGN)

National Society of Genetic Counselors (NSGC)   

 

 

Additional educational resources

 

Genetics Education Center    

American Medical Association family history tools   

Human Genome Project Education Resources  

CONTACT US:  humangeneticsnj@gmail.com

 

DISCLAIMER:  The information contained in the Human Genetics Association of New Jersey, Inc. web site is intended for educational purposes only. Individuals requiring genetic evaluation or medical treatment should contact their local genetics center or health care provider for appropriate care.  Inclusion of a link to an online resource does not represent an endorsement of that site by the Human Genetics Association of New Jersey, Inc.

$60 membership fee (includes CEUs for full year )

$75 CEU fee for non-members

$25 NON-MEMBER CEU fee for MAY 2018 FULL DAY CONFERENCE ONLY